Rare diseases, as the name depicts, affect only a small number of people compared to the other disease. Worldwide, one out of 15 persons could be affected by a rare disease, which is equivalent to approximately 400 million people.
Most Rare diseases are often chronic, serious, and
life-threatening.
In the USA, a disease is considered RARE, if
the incidence is about 1 in 200,000 or fewer, as per the Orphan Drug Act (the ODA). However,
a total of 25-30 million people is afflicted in the USA. As per NIH, around 30
million Americans are afflicted with one of approximately 7000 known rare
diseases, which is not a small number. With each passing year, the diagnosis ...